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Registered Charity Number 1166424

• Announcement: Stroke Information

• Announcement: Picture

  

   

  

• May 2025

  Please check out our shop, there are some really cool items link below,   May is here and WE are absolutely delighted to be able to have Sophie Dougherty join our ranks as our next part time co-ordinator.  Since starting Eddie’s Club last July whereby we ask corporate sponsors to join and swell as getting a whole heap of merchandise, including air fresheners, pin badges, car stickers, a special edition wax seal certificate of membership, welcome letter, a signed copy of Injury Time (signed not sure who, by but it is signed) and a very special limited edition Steady Eddie Beanie toy, which will be available later this month.  Sophie becomes our 8th member of staff and we are really excited to be able to welcome her to our very very special team, truly encompassing #WeCareBecauseWeveBeenThere.   Welcome Sophie.

  As you may recall we had our birthday celebrations last month where we had Eddie’s Easter Eggsraviganza at Edgeley Park the home of Stockport County FC, over 150 people attended and the feedback we got was tremendous and we hope to build on that and make next year our 10th birthday Bash something even truly better.  Thank you to every single one of you who attended and supported StrokeInformation it really was a special night and if nothing else we hope you are now a little more educated about Strokes and the impact a stroke can have on a family.  The amount we raised was just under £10,000.00 but I am hopeful that this figure will have been reached by the time everyone has paid their dues.

  https://strokeinformation.theshopstore.co.uk

• April 2025

   

  April 2025, its our BIRTHDAY MONTH, yes we turn NINE and to commemorate this milestone we have launched a brand new shop where you can order items directly – please check the items out and if you have any suggestions we would love to hear them.

  https://strokeinformation.theshopstore.co.uk/

  By placing any orders you will be promoting the charity, raising the much needed awareness and supporting us in what we do, so thank you.

  We are also having a celebration on the 4th April 2025 at Stockport County FC as follows tickets  are on sale for the event but you can also make a donation via scanning this QR Code with your smartphone.

  Again thank you as it is so important to keep doing what we do;  We have been working with Jay and Paul from Rhodon Films

  www.rhodonfilms.com  so please watch out for the finished article as it promises to be outstanding and really shows the incredible work that our team do.    We have also launched “Fletchlings” which is a bespoke service aimed at counselling the younger generation impacted by Stroke.   This totally confidential service is delivered by our trained counsellors with that unique lived experience of what its like to have a relative impacted by Stroke.  As our motto say’s “We Care Because We’ve Been There” we understand we have ways and means to be able to manage & cope, not convinced?  Try it out Fletchlings@strokeinformation.co.uk  in the strictest of confidence.

   

   

   

• March 2025

  Please click the above link to listen to our pilot of our brand new podcast called “The Wobblers” hope you find it useful.  As I say it is a pilot, our very first toe in the water if you like, so if you would like to appear on it or have any ideas that will help our community we would love to hear from you;   Contactus@strokeinformation.co.uk

  One thing that is becoming more and more obvious in our world is the level of ignorance, understanding, compassion and empathy !!  Yes I totally understand how the medical profession have that much to deal with that it is sometimes the response of negative feedback in areas like “Oh you won’t be able to walk again” or “you are really going to struggle talking again”. I get it…….totally as not to build up someones hope but in all honesty what rights do you have to give this prognosis ?  How do you know?   The brain is a wonderful tool that we have and even after a stroke when brain cells are damaged or even dead, IT DOES NOT MEAN YOU WONT…..NEUROPLASTICITY is amazing and there is defiance by doing things during your recovery, LITTLE and OFTEN, repetition, repetition, repetition.  TRY and TRY AGAIN, you won’t find out unless you try and it might take more times that you first anticipate but JUST DON’T GIVE UP, its all about little goals and you will achieve small gains, you might not even realise it but you will.   For example…..one of our crew (I dont have there explicit permission so I cant name them) but one of our wobblers, 7 years after their stroke has just started getting sensation in their toes……see it does happen, we have loads of good accounts of where the prognosis has looked bleak only for us to do this. (Mandy, thats not just for you).

  An area that we are keen to develop is providing a service for Children, not just children that have had strokes but have been impacted by stroke, so it could be the son of a stroke survivor, a daughter, a grandchild absolutely anyone who would like to know more to help them understand.   We’ve got people waiting in the wings to help, so if you know of anyone who needs our help, please email us ContactUs@strokeinformation.co.uk  in the strictest confidence.

      A quick shout out to our newest members of our WhatsApp group, Mark, Tracy, Joan, Chris, Mark, Joy and Georgia – Welcome to our wonderful wobblers community I hope you enjoy your time and we prove informative & helpful.

• February 2025

  February 2025,  Did you know that the month February is named for the Latin word februum which means purification. So I guess its quite ironic as your recovery journey from a stroke starts, it is a way of cleansing ….in Wales its known as “y mis bach” (That’s just for you Rhian) or little month and whilst on the subject it maybe a short month but don’t count the days, make the days count.

   Eddie’s Club is really taking off, we now have 9 Stroke survivors back in employment, back with a purpose in life and feeling wanted and part of something again.  A little teaser is that every member of Eddie’s Club will receive a special limited edition Beanie Toy version of our registered mascot, they have been ordered and should be ready to the members in time for our 9th Birthday celebrations in April 2025.   2 things on that note, if you know any organisation who would like to sponsor a Stroke survivor back into work for a nominal fee, please get in touch now, not only will you receive special stroke information merchandise, pens, stickers, air fresheners and a very cute loveable toy but you will also receive a special wax certificate to display at your premises enhancing your corporate social responsibility but more importantly we guarantee to get one more stroke survivor back in employment.   Now how good does that feel???  Secondly, in April we have our fundraiser planned and so far we have got 18 tables filled so thats 180 people agreeing to attend so far, the room holds 400 so that equates to 22 remaining….come on reserve yours now, you will not have attended anything like this.

  

• January 2025

  

  January 2025, welcome Its great to be  here.   Our FREE weekly drop ins are more popular than ever,  yes , every Monday (Except Bank Holidays) between 10am- 12 pm your chance to join in, talk stroke, not talk stroke, get things off you chests, ask away after all there is no such thing as a daft question.   We all care because we’ve been there.  So come along, no appointment necessary and if you can not physically get there, no worries, you can join via Zoom so wherever you are there is always support here for you with the ladies and gents of StrokeInformation.    A new service we are launching this year is a befriending service to children and relatives of people impacted by Stroke.    Our fully lived experienced advisors can help you, they are fully DBS cleared and totally understand.   As always anything discussed is totally confidential and will not be disclosed to any third party.

  Let us help you to make 2025 the next step on the road to recovery.    We Care Because We’ve Been There.

  May I take this opportunity to share something with you, I am unable to name the person as I do not currently have their consent, however a member of our drop in who has been a regular attendee for the last 12 months visited us as a shy character mainly down to the many misconceptions surrounding stroke.   This person came to us after their second stroke, the first being in 2013, the last one in 2018 and even though they experience other health issues they have never given up and we have embraced them and welcomed them into being an integral part of our group.  On our last drop in of 2024 this person shared with us that they experienced something really strange and remarkable all the same.  After their carers had been to visit after their shower, the carers continued to dry the person and actually started tickling them on their weak side (stroke side) you might think nothing of it but for our group member they could feel that sensation, the first time in years……it doesn’t happen all the time but when someone is told that they will not do this and they will not do that after their stroke, never ever stop trying, please don’t give up, if you are struggling, then please reach out to us, we would love to try and help you.

• 2024 December

  Its December again and time to reflect on the year as a whole, well what can we say?  ABSOLUTELY FABULOUS, what we have achieved this year can only be described as truly that.   When we embarked on this journey  of recovery after our own experience we have not only gained strength from our rehabilitation but also inspired  lots of other stroke patients and their families.    If I have to be totally honest I have been striving to ensure that this charity really is something else, a class above others, something that makes us unique and I have to admit something so so simple works and that is what we have found with “EDDIE’s CLUB”.

  Due to the popularity of “EDDIE’s CLUB” we have now managed to secure nine, 9, stroke survivors back in employment since July 24 and we hope to expand this offering especially when the element of employment is not just for StrokeInformation but also other employers too and we have only been able to succeed here with our tenacity, compassion and understanding by pulling on our own experiences.   As we look back over the last 12 months with great pride we must look very favourably into 2025 and beyond, “EDDIE’s CLUB” has definitely given us a fresh perspective on the future of Stroke care focusing on preventative measures but also channelling mindset into coping strategies and managing our new way of life.   A great way to begin is by adopting the 4 A’s   1) Awareness, make those close to you as in family members, work colleagues, friends and associates aware that you have had a stroke and that things are a little different that they used to be. 2) Acknowledgement, having that realisation that the stroke actually happened will help you in the long run, no matter how long it takes.  3) Acceptance, as soon as you an accept that what has happened has happened and it CONNOT be undone, you will start to improve.  4) Action, exactly that, take action whether it be a change of diet, exercise more, less, dink less, smoke less, try to cut any stress out of your life.  In our experiences there has always been evidence of a trigger and almost everyone we have come into contact with has suggested that there has been something that ignited that blue touch paper.

  As the year closes we must encourage everyone to get on board with “EDDIE’S CLUB” and also promote “Eddie’s Easter Eggstraviganza” where we plan to celebrate our 9th Birthday.

   

  

   

• 2024 November

  WOW how are we in November already?  This year is going so fast, to think that we came up with the idea of getting stroke survivors back into employment with Eddie’s Club and since July 2024, we have managed to get employment for Ben, Matt, Dan, Rhian, John, Steve and now Mandy  so thats 7 (Seven people) with a sense of worth and belonging once more.

  The word of StrokeInformation is growing and we are reaching stroke survivors all over the world, which is quite apparent as we have just celebrated a few days ago “World Stroke Day’ yes I know we are not going to reach out to all the 17 million or so stroke survivors each year but if we at least let some of them know that there is hope out there, then we are winning.   Our “WhatsApp” group as now reached nearly 100 members, who would have thought that when we started?

  WE have also won another benefit appeal for one of our service users which is just goes to show that we really do care because we’ve been there.

  So please let people know about Eddie’s Club and by becoming a member they can not only get a load of merchandise, which includes a special edition wax framed certificate, air fresheners, pin badges, signed book, pens and coming soon a beanie toy Steady Eddie.  However thats not all, you will as be able to partake in awareness sessions, fundraising tasks, discounted social events and all safe in the knowledge that your contribution has got another stroke survivor back in employment once more.

  

   

   SAVE THE DATE FRIDAY 4th APRIL 2025 –   Courtesy of Eagle Build, we are pleased to bring to you Eddie’s Easter Eggstravangza which will celebrate our 9th Birthday of being a registered charity.    Please reserve your seat / table now.

• 2024 October

  October 2024, wow, where has the year gone?        Eddie’s Club is proving to be a fantastic success – How would you like to enhance your corporate social responsibility?  Yes, a monthly subscription to StrokeInformation and we will guarantee to get another stroke survivor back into gainful employment

  Matt, one of our superb co-ordinators says “Working for a stroke information organization as a stroke survivor brings a deep sense of purpose and connection. Having experienced the life-altering impact of a stroke firsthand, it allows me to use my own journey of recovery to help others facing similar challenges.  I can empathize with their struggles, fears, and triumphs in a way that only a fellow survivor truly can.  This role isn’t just about providing medical or recovery information, but about offering hope and encouragement to those in the midst of their own healing process.  Sharing my personal experiences allows me to inspire others and show that recovery is possible, even when the road seems uncertain or difficult.

  In addition to sharing stroke recovery information, my work includes leading men’s mental health groups, where I focus on addressing the emotional and psychological effects of surviving a stroke.  These groups are vital spaces where men can openly discuss their mental health, often an overlooked aspect of recovery. Many men struggle with feelings of vulnerability or frustration as they adjust to life after a stroke, and these groups provide a supportive environment where they can express themselves without judgment. By facilitating these discussions, I aim to break down stigmas around men’s mental health, fostering a sense of community and resilience among those who may feel isolated in their recovery journey.

  Our newest employee, Mandy, adds "I had my stroke in October 2021, I thought I would be back to work within two to threemonths, but February 2024 I was ill health retired. 
  My journey and recovery is ongoing and I found stroke information, talking and messaging in the group has given me hope and inspiration, as well as the Monday zoom meeting, they understand the journey,feelings because of being stroke survivors. 
  Im now a coordinator for Stroke Information, I want to reach out to other stroke survivors and inspire them to think positive and celebrate their achievements no matter how small or big. This role has made me realise I have much to offer and helps me to feel valued once again. Thank you Stroke Information. 
  My aim is to attend coffee mornings that the stroke rehabilitation team offer within Somerset, to tell other stroke survivors the aims of the charity. Also to let the rehabilitation team know that this charity exists and the ways in which we can support others. 
  I support one particular individual as a bespoke counselling service with Nick, the founder of StrokeInformation via our WhatsApp group focusing on the positives of his recovery rather than the negatives.  Others may have given up but we dont.
  Im here to give support and help to others on their journey and recovery.

   

Listed in the Stockport Directory  Contact number : 0330 055 2197

Other websites specialise in rehabilitation and if you are in the Woking or surrounding area or know of those impacted by Stroke in that area, feel fret check out :- https://wokingstrokeability.com/