Registered Charity Number 1166424

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  • September 2021

    September 2021

    Welcome to September 2021, as you may recall September is quite a poignant month for me as it brings round my “Stroke versary” yes on the 10th September it will be nine whole years since my life changed forever, so it is a time for reflection a time to look back, a time to celebrate of course but also a time to look how far I have come and what I have achieved since that what one could call a very very dark day.  However, this charity is not about me and me alone it is about all the other stroke survivors that we have met along the way, the stories we have shared, the experiences we have encountered and the many challenges we have face and overcome.  If nothing else that sums it all up really, no matter what you face, providing you acknowledge it, accept it in a way that you can move forward with your life, your recovery journey, the future however please DO NOT think it will be a quick fix, it certainly isn’t, it is about one step at a time, one foot in front of the other and at a manageable pace.

     

    There will be good days, there will be bad days and there will be somedays like knock you back like just this weekend for instance from a personal point of view, a close relative informed me of just how close I was to meeting my maker, apparently, I was placed in an induced coma 9 years ago and yeah granted I obviously wouldn’t have known much about it at the time but to revisit this situation after all this time is pretty difficult to comprehend but I will because that is what us stroke survivors do.  Tenacious to the core.    Listen To this

     👇🏻

    Stroke Information Podcast Creation Case Study

  • August 2021

    August 2021

    Hello and welcome to August 2021, have you heard our latest podcast?

    https://soundcloud.com/user-510645688/stroke-information-podcast-first-draft-w-music

    Take a listen and please let us know what you think

    Also we have our book also out now called Injury Time and is reasonably priced at £10 + postage, remember that all proceeds will be split between our charity and the Michelle Wheatley Fund which we set up for one of our patrons, Michelle who had her stroke aged 27 and remains locked in after 10 years.  The podcast and the book really does give you a great idea about what makes our charity so very very different.

    Its fair to say that the last 18 months have been difficult for everyone but our normal fundraising activities havent been allowed to go ahead because of COVID and isolation restrictions but as we emerge out of the lockdown and the restrictions we are trying to get back to as normal as we can be, we are going to commence our free weekly drop ins again starting on Monday 9th August, so please come along or if you prefer you can join us via Zoom.  Please email contactus@Strokeinformation.co.uk   for further details.

    In the pipeline we have a calendar planned with some of the lovely photo’s shot by our very own trustee and director Tim Hill, again watch this space or if you would like to be informed when its ready, again drop us an email.

    Another thing that is worth considering is our Charity golf day, we are potentially having a four ball competition for teams of 4 players, starting off with a breakfast barm, a round of golf followed by a fantastic meal in the clubhouse plus it support the work that we do.

    Also coming soon our good friends at Cheadle Heath Nomads are having a charity car boot sale in aid of strokeinformation, please message for more details.

  • July 2021

    We are pleased to announce that we are now taking orders for my little piece of work, about my stroke, how I have turned something so negative into a positive and joined forces with others impacted by Stroke to assist others impacted by Stroke.   It is reasonably priced at £10 +postage and the first 25 copies will be signed (not sure by who but they will be signed)  To reserve your copy please email injurytime@StrokeInformation.co.uk

    July is always a good month for me personally despite turning another year older and some would say wiser but Im not sure about that one.  So its quite apt that we are launching the book giving you an insight about what it is like to have a stroke and what has helped me manage the situation.  It is fair to say that I couldn’t do any of this without your support so thank you so much and to show how paramount support is, effectively that is the mantra of StrokeInformation, everyone of us has a story to share and every single one of us deserves that massive pat on the back because we are stronger than we think and together we are even stronger.   The proceeds of the book is not going to line my pockets, it will be split between StrokeInformation and The Michelle Wheatley fund which we set up for Michelle Wheatley who remains in her locked in state and truly is an inspiration to all of us and really does promote the ethos of not giving up.   So well done Michelle and keep going we have faith in you and there is always HOPE.

    Month see the launch of Steady Eddie Cup  which sees Humber FC take on Cheadle Heath Nomads on what promises to be a fun filled event, so it would be great to see you.  You never know Steady Eddie himself may even turn up.

  • June 2021

    June 2021, welcome to June, well as all that is usually reported in the doom and gloom and this statistic and another statistic I thought Id share with you some good news, in fact great news, it is just to share with you, my girls make me so incredibly proud, Meg is absolutely loved not only by us but also her work colleagues or partners as they prefer to be referred to and as for Abs, well not only did she smash uni, she has only got herself a job as a newly qualified teacher.   Whats that got to do with StrokeInformation you might ask?  Well it shows that if you are determined to achieve something then you will just like recovering from a stroke, if you want to walk again then you will if you try and try and try again.   We are in a world where to many people just give up or have others give up on you.  NO if you want it go and get it and be the best version of yourself.

    We really want to help you or someone you know who has been impacted by Stroke and this help can range from giving you our experience of Stroke and how we have coped and our recovery journey to date.  Sharing tips and advice, guidance and support our group has blossomed and we are reaching out to more and more people including some fellow survivors who have been treated so incorrectly from all kinds of people ranging from their employers to the medical profession and beyond, no one is immune from stroke and we compassionately understand.

     

    https://www.linkedin.com/in/keith-mason-a1147766/detail/recent-activity/

     

  • May 2021

    May 2021 

    Welcome to May and welcome to every new person who has interacted with us over the last few months but especially Jackie, Claire, Charmaine, Alison, Charlotte, Lily, Francis, Sebastian, Kimberley, Robert & Ann, Sam and Stephen who have requested information and support.  Thank You for entrusting us to show you the compassion and understanding of what it is like having a stroke and how to best cope and manage your new way of life.  We really do hoe we can help you along the way.   We maybe a small team but collectively we are a MIGHTY team. 

    May is known for being the official stroke awareness month, so please please tel people about us and help us to help others.  Coming soon, our very first professional podcast with Riona Kelly, Kimberely Banks and I discussing Strokes in general but more specifically spinal strokes, which Riona has had experience of, along with Kimberley who is launching her own campaign about Strokes in the younger age as her son Seb had 3 strokes last September and he is 5 years of age. 

  • April 2021

    Well the month starts off with April fools day so watch out for those prankster out there although I am not sure after the year we have endured there will be too much jovial activity but on the other hand laughter is one of the best medicines available and its FREE.   A few of our group members will be happy with the fact that its FREE so embrace it and use it.

    We have all done so incredibly well so far during these uncertain times and I know we are not out of the woods just yet but it is looking a lot brighter out there and things are starting to wake up.  Our peer support group has grown stronger and larger and we have even got a Zoom call with an Indian support group based in India coming up and it fully focuses on that there is a strategy and people available to get you to reach your goals, whatever they are.   JUST REMEMBER YOU ARE NOT ON YOUR OWN.

    7th April 2021 sees our 2nd annual celebration of recognising that every stroke survivor deserves support as we are the ones who have lived it and survived the devastation of Stroke.  Please get involved and if you are on twitter please use the #SSD21 and say what has improved or worsened during the pandemic and particular during lockdown so feel free

    my take on it is #SSD21 Were still here 🙌🏻 🙌🏻 🙌🏻 💚  keep on trying……

    *Breaking News 17th April 2021 12pm

    FC Humber United are pleased to announce that they have recently scheduled an

    annual pre season fixture with Cheadle Heath Nomads, the pre season matches will be

    held with each team hosting the other at alternative home ground locations and this match will be for the “Steady Eddie Cup”. Steady Eddie is the mascot of a local charity

    StrokeInformation which was setup by former footballer Nick Clarke after his own

    severe stroke in September 2012.

    Nick shared his thoughts on the charity and the game ahead. “The charity has gone

    from strength to strength and is very appreciative for the support that FC Humber United

    and Cheadle Heath Nomads have shown. Support is so, so important when you have

    been impacted by Stroke and that is the mantra of the charity by offering true peer led

    support and their tagline is #WeCareBecauseWeveBeenThere.”

    “During the lockdown and pandemic everyone has experienced some form of isolation,

    well please imagine that all the time, as that is what it’s like after your stroke, you don’t

    really see anyone, no-one rarely pops round for a brew or a chat, effectively making the

    stroke survivors feel unworthy, StrokeInformation is reducing that isolation. Although the

    charity is based over in Stockport, they will help anyone and anywhere at any age, most

    people believe that Strokes only affect those at a certain age, well that’s not true and is

    quite apt for the charity at the moment as a young mother from Bradford has just

    reached out to StrokeInformation after her son has had 3 strokes since September 2020

    and he is just 5 years of age!!”

    FC Humber United Chairman, Richard Smales comments on this latest link for the club “This is another fantastic link and partnership for us as a club, it’s only when you read

    about what StrokeInformation offer as support that’s when it hits home that a stroke can

    affect anyone at any age. With this link between ourselves and Cheadle Heath Nomads

    it’s more than just a game of football, we can enjoy the annual pre-season fixture

    however know that we are also doing our bit to push this extremely important charity at the same time.

    It’s a big thank you to Marc for making an idea into a reality for all us and Cheadle to

    build a strong partnership over the coming years, we are very much looking forward to

    the trip across the pennines and to test ourselves against NWCFL opposition too.

    Another exciting and important partnership we have added to the club as we continue to

    grow and move forwards in the right direction.”

    Cheadle Heath Nomads Chairman, George Gibbons added; “On behalf of everyone at

    Cheadle Heath Nomads, we are delighted and honoured to participate for The Steady

    Eddie Cup with our friends from FC Humber United. Nick Clarke and his colleagues

    undertake a tremendous amount of valuable work in the community, not only assisting

    stroke patients but also their immediate families. Hopefully with the help of both clubs

    we can in some way ensure that their amazing work continues. I’m confident that these

    annual fixtures will be fiercely contested on the pitch and celebrated with a drink or two

    afterwards.

    We are looking forward to hosting the inaugural match and meeting new football friends

    along the way.”

    FC Humber United, Director of Football Marc Brown: “When myself, Rich and Mark discussed the fixture we wanted to do something that had potential to be an annual event which would raise awareness of a great charity. Having previously been part of a few fundraising events

    for Stroke Information it was an obvious decision. George Gibbons and everyone at

    Nomads have shown a great deal of enthusiasm to this exciting partnership. The speed in

    which all 3 parties have managed to get everything over the line shows the commitment,

    desire and forward thinking everyone is which can only make everyone stronger for it.

    The work Nick and his team carry out is priceless and its personally a proud moment to

    be able to continue supporting them.”

  • March 2021

    March 2021  

     

    Stroke is a leading cause of death and disability in the UK. There are around 32,000 stroke-related deaths in England each year. Deaths related to stroke have declined by 49% in the past 15 years. This has been accredited to a combination of better prevention, earlier treatment and more advanced treatment. 

    Yes there are organisations out there who focus on the prevention and raising awareness of the condition is very important.  However, where we differ is that everyone involved with Strokeinformation has either had a stroke or been impacted by a stroke so we would say we would know how to cope, how to manage the stroke as opposed to the stroke managing you.   As we are now approaching spring and hopefully some better weather and restrictions soon to be lifted, it will give us all a chance to get back out there in the fresh air and rather than counting the days, we can make them count. 

     

     #WeCareBecauseWeveBeenThere 

  • February 2021

    February 2021 

    Listen to this,,,,,

    With the news of yet another vaccine on the way, 2021 is turning out to be a year of HOPE, at last there is a chance to get back to some kind of normal 

    https://lnkd.in/dPyjPHT   Would you be interested in taking part in a survey which could change the face of care?  Please take a look and answer a few questions as your answers could make a real difference. 

    Have a look at this?https://www.facebook.com/ACurrentAffair9/videos/vb.129086560531063/430510868303952/?type=3&theater 

    Care homes and residential homes are so much in the news at the moment, highlighting the need for the vaccine to be rolled out to everyone and whether its correct to vaccinate the elderly and the vulnerable first or to be the youngest first upwards, whatever the best way to roll the vaccine out I am a little surprised as workers on the front line such as teachers, teaching assistants, policemen, firemen, shop workers seem to be on the list but not as a priority.  I went for my 1st Jab last Monday 25th Jan 2021 and as I waited in the recovery room for 15 minutes after the injection I was privileged to hear others advising it was their 2nd vaccination….HOW?? 

    STROKE FACT: Every minute someone is having a stroke, 1.9 million brain cells are lost. 

    The emphasis is on care is important without doubt, getting the patient seen to as quickly as possible, however the after care is vitally as important and here are strokeinformation we can help. 

    We have regular video / zoom meetings with stroke survivors from all over the country and we can have more around the world as our support and guidance cannot be beaten #WeCareBecauseWeveBeenThere 

Listed in the Stockport Directory  Contact number : 0330 055 2197

Other websites specialise in rehabilitation and if you are in the Woking or surrounding area or know of those impacted by Stroke in that area, feel fret check out :- https://wokingstrokeability.com/

 

 

UK online and telephone support.
UK online and telephone support.

Stroke Information supplies online and telephone support to anyone around the UK looking for advice and motivation from people with experience.

We encourage stroke survivors and their families to contact usand share your stories and experiences.

We also have supporters nationwide who we can call on if necessary.