Useful Links & Tools
At Stroke Information, we firmly believe that knowledge serves as a vital weapon in the ongoing battle against strokes, which is why we are dedicated to providing you with a comprehensive array of valuable resources and informative links that can truly make a meaningful difference in lives.
We invite you to join our mission to raise awareness as we utilise these essential tools to cultivate an informed and proactive community, united in the goal of significantly reducing the impact of strokes and improving the quality of life for all those affected by these conditions.
Would you like to chat and talk to other stroke survivors and their families?
To get an understanding of what to expect, what to do should a loved one be struck down with the symptoms or indeed they are in hospital or care home and you cannot visit them in person – again get in touch, we are here to help.
WANT TO ENQUIRE ABOUT BENEFITS?
What you could be entitled to?
We have vast experience regarding benefit claims, be it PIP personal independence payment, DLA Disability Living Allowance, UC Universal Credit or do you just have a query……then please contact us via email at ContactUs@Strokeinformation.co.uk in the strictest of confidence and let us help you.
We do NOT charge for this service.
Locked In Syndrome (LIS)
As some of you may not know Locked In Syndrome or LIS as it is known is as a result of a Stroke.
Is it locked in or as I call it locked out?? The person, the stroke survivor is still there, it is just effectively they are locked in there situation or as I refer locked out as in the survivor is locked out of the world and all that is around them. They can still hear, see, etc but are unable to use their voice to communicate with the rest of us.
We have to find different ways of listening or communicating, like my old mate Pete Coghlan (AKA The Wizard of Aus) and another dear friend Kate Allatt ironically both once locked in / out and even more bizarrely both from Stockport originally. Pete who I Skype now and again is now living in Perth and Kate well she is also on the other side of the universe or Sheffield as it is known. Both Pete & Kate are true inspirations to me and part of the reason I started this blog site which I am now pleased to have found other like minded inspirational characters.
Our aim has always been to make StrokeInformation a registered charity, we didnt give up so please as I write this, bear that in mind, NEVER GIVE UP!
Should you wish to donate to our official StrokeInformation patron’s account, namely the StrokeInformation Michelle Wheatley Fund the details are as follows:
Account Number 10920320
Sort Code 205534
Reference 0501003543 via the Vernon Building Society
Locked In Poem
Syndrome they call it Locked In
A beating finger or a blinking eye
A better phrase would be Locked Out
Awesome frustration is but a sigh
All you really want to do is Scream or Shout
And then there’s laughter or to cry
Amazed at the lingering self doubt
Awake with anguish, Am I to die?
Another test to see if I can feel my snout
About a stroke Im knowledgeable about.
Books are great for family members or friends
But only those who have lived through it will truly understand
Between living and dying is where Im at, does that make amends?
Be sympathetic, I can hear every word and….
Beep !! That’s my monitor so, stay with me
Blink, thats my eye talking to you…..
Can you hear me???